The list is divided in two sections:
Why assessing? Parents’ and staff’s experiences
Darcy, L., Björk, M., Enskär, K., & Knutsson, S. (2014). The process of striving for an ordinary, everyday life, in young children living with cancer, at six months and one year post diagnosis. European Journal of Oncology Nursing, 18(6), 605-612.
Gibson, F., Kumpunen, S., Bryan, G., & Forbat, L. (2018). Insights from parents of a child with leukaemia and healthcare professionals about sharing illness and treatment information: A qualitative research study. International Journal of Nursing Studies, 83, 91-102.
Greenzang, K. A., Cronin, A. M., Kang, T. I., & Mack, J. W. (2018). Parental distress and desire for information regarding long-term implications of pediatric cancer treatment. Cancer. In print. DOI: 10.1002/cncr.31772.
Kästel, A., Enskär, K., & Björk, O. (2011). Parents’ views on information in childhood cancer care. European Journal of Oncology Nursing, 15(4), 290-295.
Last, B. F., & van Veldhuizen, A. M. H. (1996). Information about diagnosis and prognosis related to anxiety and depression in children with cancer aged 8–16 years. European Journal of Cancer, 32(2), 290-294.
Pöder, U., & von Essen, L. (2009). Perceptions of support among Swedish parents of children on cancer treatment: A prospective, longitudinal study. European Journal of Cancer Care, 18(4), 350-357.
Ringnér, A., Jansson, L., & Graneheim, U. H. (2011). Parental experiences of information within pediatric oncology. Journal of Pediatric Oncology Nursing, 28(4), 244-251.
Ringnér, A., Jansson, L., & Graneheim, U. H. (2011). Professional caregivers’ perceptions of providing information to parents of children with cancer. Journal of Pediatric Oncology Nursing, 28(1), 34-42.
Ringnér, A., Öster, I., Björk, M., & Graneheim, U. H. (2013). Talking via the child: Discursively created interaction between parents and health care professionals in a pediatric oncology ward. Journal of Family Nursing, 19(1), 29-52.
Rodgers, C. C., Laing, C. M., Herring, R. A., Tena, N., Leonardelli, A., Hockenberry, M., et al. (2016). Understanding Effective Delivery of Patient and Family Education in Pediatric Oncology. Journal of Pediatric Oncology Nursing, 33(6), 432-446.
Rodgers, C. C., Stegenga, K., Withycombe, J. S., Sachse, K., & Kelly, K. P. (2016). Processing Information After a Child’s Cancer Diagnosis—How Parents Learn. Journal of Pediatric Oncology Nursing, 33(6), 447-459.
Approaches for assessment
Arida, J. A., Sherwood, P. R., Flannery, M., & Donovan, H. S. (2016). Representational Approach: A Conceptual Framework to Guide Patient Education Research and Practice. Oncology Nursing Forum, 43(6), 781-783.
Donovan, H. S., & Ward, S. (2001). A representational approach to patient education. Journal of Nursing Scholarship, 33(3), 211-216.
Donovan, H. S., Ward, S. E., Song, M. K., Heidrich, S. M., Gunnarsdóttir, S., & Phillips, C. M. (2007). An update on the representational approach to patient education. Journal of Nursing Scholarship, 39(3), 259-265.
Haugen, M. S., Landier, W., Mandrell, B. N., Sullivan, J., Schwartz, C., Skeens, M. A., et al. (2016). Educating Families of Children Newly Diagnosed With Cancer. Insights of a Delphi Panel of Expert Clinicians From the Children’s Oncology Group. Journal of Pediatric Oncology Nursing, 33(6), 405-413.
Ingadottir, B., Johansson Stark, Å., Leino-Kilpi, H., Sigurdardottir, A. K., Valkeapää, K., & Unosson, M. (2014). The fulfilment of knowledge expectations during the perioperative period of patients undergoing knee arthroplasty – a Nordic perspective. Journal of Clinical Nursing, 23(19-20), 2896-2908.
Rodgers, C., Bertini, V., Conway, M. A., Crosty, A., Filice, A., Herring, R. A., et al. (2018). A Standardized Education Checklist for Parents of Children Newly Diagnosed With Cancer: A Report From the Children’s Oncology Group. Journal of Pediatric Oncology Nursing, 35(4), 235-246.
Sobo, E. J. (2004). Pediatric nurses may misjudge parent communication preferences. Journal of Nursing Care Quality, 19(3), 253-262.